August 22 2014 Latest news:
Thursday, March 27, 2014
Inspired by Kerry’s strength and fight for life, her fiancé and family are determined for her legacy to continue through The Kerry Alex Thorpe Trust.
In her short life, Kerry raised awareness for both cystic fibrosis and the desperate need for people to register for organ donation.
She passed away on Friday, aged 23, from end stage cystic fibrosis at Papworth Hospital.
Loving fiancé Josh Nelli said: “Myself and her family are passionate that all of Kerry’s hard work doesn’t go to waste so we will continue her legacy even after she’s gone.
“Without realising, Kerry has raised an astonishing amount of awareness and it would be wrong if we didn’t follow that on.
“We have to seize the moment and help others in the future. We don’t want people to have to experience what we’re now having with burying a loved one.
“We’re passionate that if we can continue Kerry’s message then one day, hopefully, a cure can be found.”
A Facebook page for The Kerry Alex Thorpe Trust was set up in the days after she died and within 48 hours it had attracted nearly 4,500 “likes” showing how many lives she had touched.
Her mum Jacqui Brett added: “Kerry worked so hard to get a huge amount of followers to her blog and on Facebook.
“She has built the foundations and we’re going to build the house.”
The long-term goal is for The Kerry Alex Thorpe Trust to become an official charity but initially work with Live Life Then Give Life, for which Kerry was an ambassador, and The Cystic Fibrosis Trust.
Josh added: “We hope to raise funds and awareness for organ/blood donation and the need for continued funding to find a cure for cystic fibrosis however we hope to be in a stable financial position where we can then branch out and support other charities, both locally and nationally, for whatever charitable causes we feel necessary.
“We plan to hold regular charity events throughout the course of the year such as social events, football matches and golf days, with the ultimate goal being that we reach the magic £5,000 mark within the space of a year so we can officially be registered as a charity.”
The charity will also be common ground for Josh and Kerry’s family.
“Josh has become a part of our family. It’s not like they broke up and they still love each other,” Mrs Brett said.
“He is still our son-in-law and always will be.”
Anyone wanting to donate can send cheques for The Kerry Alex Thorpe Trust made payable to Archant Community Media Ltd to Lauren Everitt, Ipswich Star, 30 Lower Brook Street, Ipswich, IP4 1AN.