Partly Cloudy

Partly Cloudy

max temp: 13°C

min temp: 8°C

ESTD 1874 Search

Ipswich: New lungs would be the perfect start to New Year - Cystic Fibrosis patient’s plea for people to sign up as organ donors

14:40 03 January 2013

Marie Wright is having all her hair cut off to donate it to The Little Princess Trust which makes wigs for youngsters who bare suffering from Cancer. She was inspired to do it after her sister died of Leukaemia seven years ago. She has cystic fibrosis herself and is on the transplant list for heart and lungs.

Marie Wright is having all her hair cut off to donate it to The Little Princess Trust which makes wigs for youngsters who bare suffering from Cancer. She was inspired to do it after her sister died of Leukaemia seven years ago. She has cystic fibrosis herself and is on the transplant list for heart and lungs.

Archant

A NEW set of lungs the new year - that is the wish of Marie Wright, who is battling the genetic disease cystic fibrosis (CF).

shares

Marie was left disappointed at the end of last year when a set of lungs were found for her but later deemed not “viable”.

The brave 21-year-old, who lives with her parents in Renfrew Road, has urged people to sign up to become an organ donor. She has also backed calls for a change in the law to make the system “opt-out” so people are automatically donors (currently people have to register to be one).

In November, Marie, whose twin brother John also has CF, got the call she has been waiting two years for – a set of lungs had been found for her. However, after hours of tests to make sure she was compatible, she and her family were given the devastating news that the organ was not viable.

But refusing to be beaten, Marie remains positive.

“It just means I will be more prepared for the call next time.

“It is really disappointing but the lungs weren’t right.

“It just shows how important it is for people to sign up and become an organ donor. Thousands of people die waiting for new organs, I have lost friends waiting on the transplant list.”

Marie was lucky enough to spend Christmas at home with her parents, four brothers, niece and nephew, but saw in the new year at Papworth Hospital. She is hopeful that 2013 will be the year she gets her wish.

“It’s going to be three years now,” she said. “I can’t go anywhere, I can’t do anything until it happens.”

“I really think the whole donation system needs to change,” she added. “It should be opt-out. I think it would save lots of lives.”

In November Marie was inspired to cut off her long hair to raise money for charity after losing her 20-year-old sister Sabrina Wright to leukaemia seven years ago.

She has raised more than £1,500 for both the Cystic Fibrosis Trust and the Little Princess Trust, which makes wigs for children battling cancer.

To donate to Marie’s appeal, visit www.justgiving.com/Marie-Wright5

What do you think about the organ donor system? Write to health reporter Lizzie Parry at Ipswich Star, 30 Lower Brook Street, Ipswich, IP4 1AN or e-mail lizzie.parry@archant.co.uk

shares

1 comment

  • Keep your chin up Marie .....My son also has CF (he is now 21) ...I hope you get the 'call' ....All the best to you and your brother....

    Report this comment

    ukmartian

    Thursday, January 3, 2013

Hollesley Bay Colony

A war of words has broken out amid allegations of a ‘disgraceful coup’ aimed at ousting the chairman of Hollesley Bay open prison’s Independent Monitoring Board.

Around 40 pupils and 20 parents, from Little Bealings Primary School, went on strike today over SATs exams.They decided to take learning outside and into Playford woods.

Education chiefs have criticised parents who took their children out of school today as part of a national protest against SATS exams.

Views of Halesworth ,Suffolk.

A prank which saw fake out of order stickers placed onto payment machines in a north Suffolk car park last week could have lost Waveney District Council revenue.

Hundreds of flowers and messages have been placed on the fence around Thurston Community College after a pupil died from a shooting.

Thousands of pounds have been raised in the wake of the tragic death of a 13-year-old Thurston boy, with the Suffolk community rallying together to support the family.

The team behind the building of the new Woolverstone Macmillan cancer centre at Ipswich Hospital celebrate reaching another milestone in the appeal. 
Jess Watkins, Kate Ashton, Sharon Austin, Mike Durrant, Joy Moulton, Jan Ingle, Ellie Ball, 
Pauline Meadows, Cheryl Thayer, Gill Heard, Helen Glenholmes and Mandy Jordan.

A brand new cancer centre opening in Ipswich soon has been boosted by a fundraising campaign which has raised more than a third of its £3.7million target in just 18 months.

The accident happened in Spring Road

Severe delays in Spring Road, Ipswich, this morning have been caused by a two-car crash.

Stock image of A12.

Long delays on the A12 London-bound in Colchester have been caused by a two-car crash.

Most read

Great Days Out

cover

Click here to view
the Great Days Out
supplement

View

Most commented

HOT JOBS

Show Job Lists

Streetlife

Newsletter Sign Up

Great British Life

Great British Life
MyDate24 MyPhotos24