Partly Cloudy

Partly Cloudy

max temp: 26°C

min temp: 16°C

ESTD 1874 Search

Ipswich: New lungs would be the perfect start to New Year - Cystic Fibrosis patient’s plea for people to sign up as organ donors

14:40 03 January 2013

Marie Wright is having all her hair cut off to donate it to The Little Princess Trust which makes wigs for youngsters who bare suffering from Cancer. She was inspired to do it after her sister died of Leukaemia seven years ago. She has cystic fibrosis herself and is on the transplant list for heart and lungs.

Marie Wright is having all her hair cut off to donate it to The Little Princess Trust which makes wigs for youngsters who bare suffering from Cancer. She was inspired to do it after her sister died of Leukaemia seven years ago. She has cystic fibrosis herself and is on the transplant list for heart and lungs.

Archant

A NEW set of lungs the new year - that is the wish of Marie Wright, who is battling the genetic disease cystic fibrosis (CF).

shares

Marie was left disappointed at the end of last year when a set of lungs were found for her but later deemed not “viable”.

The brave 21-year-old, who lives with her parents in Renfrew Road, has urged people to sign up to become an organ donor. She has also backed calls for a change in the law to make the system “opt-out” so people are automatically donors (currently people have to register to be one).

In November, Marie, whose twin brother John also has CF, got the call she has been waiting two years for – a set of lungs had been found for her. However, after hours of tests to make sure she was compatible, she and her family were given the devastating news that the organ was not viable.

But refusing to be beaten, Marie remains positive.

“It just means I will be more prepared for the call next time.

“It is really disappointing but the lungs weren’t right.

“It just shows how important it is for people to sign up and become an organ donor. Thousands of people die waiting for new organs, I have lost friends waiting on the transplant list.”

Marie was lucky enough to spend Christmas at home with her parents, four brothers, niece and nephew, but saw in the new year at Papworth Hospital. She is hopeful that 2013 will be the year she gets her wish.

“It’s going to be three years now,” she said. “I can’t go anywhere, I can’t do anything until it happens.”

“I really think the whole donation system needs to change,” she added. “It should be opt-out. I think it would save lots of lives.”

In November Marie was inspired to cut off her long hair to raise money for charity after losing her 20-year-old sister Sabrina Wright to leukaemia seven years ago.

She has raised more than £1,500 for both the Cystic Fibrosis Trust and the Little Princess Trust, which makes wigs for children battling cancer.

To donate to Marie’s appeal, visit www.justgiving.com/Marie-Wright5

What do you think about the organ donor system? Write to health reporter Lizzie Parry at Ipswich Star, 30 Lower Brook Street, Ipswich, IP4 1AN or e-mail lizzie.parry@archant.co.uk

shares

1 comment

  • Keep your chin up Marie .....My son also has CF (he is now 21) ...I hope you get the 'call' ....All the best to you and your brother....

    Report this comment

    ukmartian

    Thursday, January 3, 2013

View of Alton Water taken from near Lemons Hill Bridge, nearTattingstone.
Photograph: KEITH MINDHAM

The body of a man in his 20s has been recovered from Alton Water in Tattingstone after he fell into the water earlier this evening.

Pre season training starts at ITFC

Ipswich Town kicked off their pre-season preparations this morning, ahead of the 2015-16 Championship campaign.

Abellio Greater Anglia

Rail delays in Stowmarket have been caused by urged repairs needed on the line.

An 
Abellio Greater Anglia train.

Rail services between London and East Anglia are expected to be affected by the heatwave on Wednesday.

Emergency services are at the scene

Traffic delays in Darsham have been caused by a multi-car collision on the A12.

The Government is talking about changing the goalposts when it comes to measuring poverty while suggesting yet more cuts.

The Government has no doubt just breathed a sigh of relief.

Allison and Philip Heathcote

A Suffolk survivor of last week’s Tunisian terror attack, which killed 38 people including her husband, is in a critical but stable condition following five hours of surgery in a British hospital.

An accident has caused travel delays

The A1120 in Earl Soham is closed after a crash.

Natasha Potter, assistant managing director of Only Cowards Carry, Colchester MP Will Quince, and charity founder Caroline Shearer

The mother of a teenager fatally stabbed in Colchester today presented a petition to Downing Street calling for better education around the dangers of knives.

84 year old James Kelly takes part in his 100 th Park Run at Chantry Park Ipswich Park Run.

With a rich sporting history in this country across hundreds of disciplines, Suffolk has produced its fair share of sporting heroes.

Most read

Most commented

Topic pages