Partly Cloudy

Partly Cloudy

max temp: 22°C

min temp: 16°C

ESTD 1874 Search

Little girl is supporting heart charity’s campaign

12:00 28 August 2014

Lucy Bluett with her mum Amanda Prentice.

Lucy Bluett with her mum Amanda Prentice.

A little girl who was born with two holes in her heart and her family are giving their backing to a national campaign to raise money for research so more children in a similar position can reach school age.

Lucy Bluett, seven, from Bury St Edmunds, was diagnosed with a “a tremendous heart murmur” shortly after being born at West Suffolk Hospital in the town.

Further investigation revealed she had Tetralogy of Fallot, which means that blood with less oxygen was going around her body, and she would die if she did not have surgery before she was one. The condition was spotted because Lucy had two holes in her heart, causing a very large murmur.

While research over the past 50 years has seen major improvements in the survival of children born with congenital heart defects, much more work is needed to ensure they have the greatest chance of living a long and healthy life, the British Heart Foundation’s medical director has said.

In the East of England 37 children born with heart defects die before their first day of school each year statistics from the BHF have found.

With thousands of children starting school in September, the charity is launching Bag it. Beat it. to raise vital funds for research so more children can make it to school.

Lucy and her family, of Greenways Crescent, are supporting the campaign, which is urging the public to donate bags of their unwanted items to BHF shops

Lucy’s mother Amanda Prentice, 37, who is a supervisor at Farmfoods in Bury St Edmunds, said: “The more research and awareness that can be raised about congenital heart defects the better.”

She added: “It’s something that’s not in the public eye and that’s a real shame for something that has no cure and is a really horrible thing to have. I think that’s also because it’s a very, very invisible disease; to look at Lucy you would never know there’s anything wrong with her.”

Miss Prentice, who also has a nine-year-old daughter, said finding out that, without major open heart surgery, Lucy would not live to see her first birthday was the “single most horrific thing that I have ever been told”.

She said following surgery Lucy really started to flourish, but her development was still slower than normal.

“She’s such a happy girl, you would never know there was anything wrong with her, but she does get tired easily. Sometimes she gets blue around the mouth, which is something we have to keep an eye on because as she gets older she will outgrow her surgery, but at her last cardiology appointment they said everything looked great.”

Miss Prentice described the support the BHF had given the family as “invaluable”.

Heart problems remain the most common defect at birth, with 4,000 children in the East of England going to school every day with a heart condition they were born with.

The BHF says further and faster research will help more children survive with a heart defect and improve the quality of life for those undergoing life-changing surgery.

•To get involved in Bag it. Beat it. fill a bag with good quality clothes, shoes, books, handbags, DVDs, CDs, bric-a-brac and children’s toys and take it into a BHF shop.

To find a shop or to book a free collection of unwanted items visit bagit.bhf.org.uk or call 0800 915 7000.

0 comments

Welcome , please leave your message below.

Optional - JPG files only
Optional - MP3 files only
Optional - 3GP, AVI, MOV, MPG or WMV files
Comments

Please log in to leave a comment and share your views with other East Anglian Daily Times visitors.

We enable people to post comments with the aim of encouraging open debate.

Only people who register and sign up to our terms and conditions can post comments. These terms and conditions explain our house rules and legal guidelines.

Comments are not edited by East Anglian Daily Times staff prior to publication but may be automatically filtered.

If you have a complaint about a comment please contact us by clicking on the Report This Comment button next to the comment.

Not a member yet?

Register to create your own unique East Anglian Daily Times account for free.

Signing up is free, quick and easy and offers you the chance to add comments, personalise the site with local information picked just for you, and more.

Sign up now

RAF Honington - Barnham Camp.

A 62-year-old motorcyclist who died at the scene of a two vehicle collision near RAF Barnham on Thursday has been named as Peter Hancock from Sudbury.

Made in Dagenham's Daniella Bowen and cast. Photo: Mark Sepple

It’s been nearly 50 years since women workers at Ford’s Dagenham plant went on strike for equal rights, writes Wayne Savage.

Do you know this man? Police have released an e-fit image following a burglary in Braintree

Police have released an e-fit image of a man they want to speak to in connection to a burglary in Braintree.

Ipswich Crown Court

A father stabbed by his son more than 30 times during a row about a printer has asked a court for a restraining order banning all contact between them to be reinstated.

Fire Service Stock Pictures

A fire engine from Ipswich’s Princes Street station was called to extinguish a fire in a pile of rubbish this morning.

People in Earl Soham are concerned about the erosion of their village green.

It is the proud centrepiece of many an English village - but in one Suffolk community it is disappearing by the day.

Suffolk Fire and Rescue Service image.

Firefighters were called earlier this morning to a gas cooker fire at The Anchor pub, Walberswick.

Most read

Great Days Out

cover

Click here to view
the Great Days Out
supplement

View

Most commented

HOT JOBS

Show Job Lists

Streetlife

Newsletter Sign Up

Sign up to the following newsletters:

MyDate24 MyPhotos24