Partly Cloudy

Partly Cloudy

max temp: 20°C

min temp: 16°C

ESTD 1874 Search

Little girl is supporting heart charity’s campaign

12:00 28 August 2014

Lucy Bluett with her mum Amanda Prentice.

Lucy Bluett with her mum Amanda Prentice.

A little girl who was born with two holes in her heart and her family are giving their backing to a national campaign to raise money for research so more children in a similar position can reach school age.

shares

Lucy Bluett, seven, from Bury St Edmunds, was diagnosed with a “a tremendous heart murmur” shortly after being born at West Suffolk Hospital in the town.

Further investigation revealed she had Tetralogy of Fallot, which means that blood with less oxygen was going around her body, and she would die if she did not have surgery before she was one. The condition was spotted because Lucy had two holes in her heart, causing a very large murmur.

While research over the past 50 years has seen major improvements in the survival of children born with congenital heart defects, much more work is needed to ensure they have the greatest chance of living a long and healthy life, the British Heart Foundation’s medical director has said.

In the East of England 37 children born with heart defects die before their first day of school each year statistics from the BHF have found.

With thousands of children starting school in September, the charity is launching Bag it. Beat it. to raise vital funds for research so more children can make it to school.

Lucy and her family, of Greenways Crescent, are supporting the campaign, which is urging the public to donate bags of their unwanted items to BHF shops

Lucy’s mother Amanda Prentice, 37, who is a supervisor at Farmfoods in Bury St Edmunds, said: “The more research and awareness that can be raised about congenital heart defects the better.”

She added: “It’s something that’s not in the public eye and that’s a real shame for something that has no cure and is a really horrible thing to have. I think that’s also because it’s a very, very invisible disease; to look at Lucy you would never know there’s anything wrong with her.”

Miss Prentice, who also has a nine-year-old daughter, said finding out that, without major open heart surgery, Lucy would not live to see her first birthday was the “single most horrific thing that I have ever been told”.

She said following surgery Lucy really started to flourish, but her development was still slower than normal.

“She’s such a happy girl, you would never know there was anything wrong with her, but she does get tired easily. Sometimes she gets blue around the mouth, which is something we have to keep an eye on because as she gets older she will outgrow her surgery, but at her last cardiology appointment they said everything looked great.”

Miss Prentice described the support the BHF had given the family as “invaluable”.

Heart problems remain the most common defect at birth, with 4,000 children in the East of England going to school every day with a heart condition they were born with.

The BHF says further and faster research will help more children survive with a heart defect and improve the quality of life for those undergoing life-changing surgery.

•To get involved in Bag it. Beat it. fill a bag with good quality clothes, shoes, books, handbags, DVDs, CDs, bric-a-brac and children’s toys and take it into a BHF shop.

To find a shop or to book a free collection of unwanted items visit bagit.bhf.org.uk or call 0800 915 7000.

shares

0 comments

Welcome , please leave your message below.

Optional - JPG files only
Optional - MP3 files only
Optional - 3GP, AVI, MOV, MPG or WMV files
Comments

Please log in to leave a comment and share your views with other East Anglian Daily Times visitors.

We enable people to post comments with the aim of encouraging open debate.

Only people who register and sign up to our terms and conditions can post comments. These terms and conditions explain our house rules and legal guidelines.

Comments are not edited by East Anglian Daily Times staff prior to publication but may be automatically filtered.

If you have a complaint about a comment please contact us by clicking on the Report This Comment button next to the comment.

Not a member yet?

Register to create your own unique East Anglian Daily Times account for free.

Signing up is free, quick and easy and offers you the chance to add comments, personalise the site with local information picked just for you, and more.

Sign up now

A double lightining strike has hit and destroyed a house. Darren Hobson surveys the damage. Picture: Stephen Huntley.

A hero father-of-six who led his family to safety following a lightning strike to his home has praised his neighbours’ support.

Stuart Cullen, from the Lowestoft area, who died in the terrorist attack in Tunisia.

The family of a man who died in the Tunisian massacre have paid tribute to their “third musketeer”.

Joy Poppy, aged 82, who died following a collision in Woodbridge on July 1

Mrs Poppy died after a collision in New Street, Woodbridge, on Wednesday.

Libby Brown headteacher at Kyson Primary, Woodbridge.

A board of school governors has launched a fierce attack on Suffolk County Council after their headteacher had to stop work for seven weeks.

BBC Radio Suffolk's Mark Murphy with one of the Scamnesty bids

A Suffolk Trading Standards Scamnesty campaign is using special bins across the county in a bid to snare unscrupulous conmen.

Cedar House, Pytches Road, Melton - set to have ten new homes in its grounds.

Developers who have bought a prime site on the edge of Woodbridge from the district council expect to submit proposals to create new homes next month.

Beach patrol rescue spaniels from Clacton beach.
Owner and her dogs.

A beach patrol team at Clacton swung into action to rescue two dogs yesterday evening.

Police in Ipswich are investigating a number of incidents where eggs were thrown at people and buildings in the town.

Culford Girls under 18 Hockey Team January 1990

Were you a member of the Culford girls under 18 hockey team in January 1990. Were you in the squad photographed here?

Sybil Andrews at work in her studio, circa 1980 - Photo from the book

Suffolk artists are often hidden from history, but a campaigner is hoping to rectify that.

Most read

Most commented

Topic pages