Partly Cloudy

Partly Cloudy

max temp: 16°C

min temp: 7°C

ESTD 1874 Search

WIN A NEW HYUNDAI i10 - See the EADT on June 8 for full details

Stowmarket: Baby Evanee, the little fighter, defies the odds to overcome heart problems

13:00 21 August 2014

Evanee Day was born in January with a rare heart defect. Since then she has overcome the odds and now seems to fighting fit. Mum Lisa and Evanee.

Evanee Day was born in January with a rare heart defect. Since then she has overcome the odds and now seems to fighting fit. Mum Lisa and Evanee.

They named her Evanee which means young fighter – and the words could not be closer to the truth for this “miracle” seven-month-old.

shares
Evanee Day was born in January with a rare heart defect. Since then she has overcome the odds and now seems to fighting fit. Lisa and Matt Day with Evanee and her sister Kaira.Evanee Day was born in January with a rare heart defect. Since then she has overcome the odds and now seems to fighting fit. Lisa and Matt Day with Evanee and her sister Kaira.

When Lisa and Matt Day went for their 20-week scan they did not expect to be told their baby had a heart defect.

At each of the following scans doctors told them that little Evanee’s condition was even worse than first feared.

It was eventually confirmed that she would need three open-heart surgeries in the first few days of her life.

She was diagnosed with Hypoplastic Left Heart Syndrome – meaning her left ventricle had become very small because of a blockage.

Evanee Day was born in January with a rare heart defect. Since then she has overcome the odds and now seems to fighting fit. Evanee Day with her sister KairaEvanee Day was born in January with a rare heart defect. Since then she has overcome the odds and now seems to fighting fit. Evanee Day with her sister Kaira

The couple, from Masefield Road, Stowmarket, were told the risks of Evanee surviving had become smaller with every new complication.

Mrs Day, 27, said: “It was probably the worse few months of our lives, we did not know what to expect. We saw people at the same time going for their 20 week scans but we found out that our baby had a heart problem.

“The next few months were not easy at all because we knew she was going to have the three big surgeries in the first few days.

“We had to leave our daughter Kaira which was not easy because we had never left her before. We were lucky that we have a very supportive family and my mum looked after her.”

Matt and Kaira Day looking at Evanee's diary that the nurses did for her during her time in hospital.Matt and Kaira Day looking at Evanee's diary that the nurses did for her during her time in hospital.

Evanee was born on January 21 and immediately defied the odds. She needed no assistance to breathe and was better than originally thought.

“I was told she might be blue and that she might need help breathing, but when she was born she was screaming so we knew that her lungs and everything were working as they should be,” Mrs Day added.

But Evanee, who had been seen by specialists at the Evelina London Children’s Hospital, still had to undergo rare surgery. Experts placed bands around her pulmonary arteries and a stent to keep the duct open which would allow her heart to grow.

Mr Day, 34, who works as a yard foreman in Creeting St Mary, said: “The hospital’s staff are worth their weight in gold, it’s an amazing hospital, we could not praise them enough; because of how grateful we are we are going to be doing a walk next year from the Evelina to West Suffolk Hospital.”

The operation was undertaken nine days after Evanee was born with the family able to come home on February 9 when she was three weeks old.

But there was more trouble on the way. Shortly after coming home she was taken to hospital on two occasions because she was pale and drowsy. Both times it was discovered she had kidney reflux – a condition where a valve in the bladder fails to work.

Not long after both Evanee and her sister, Kaira, three, had bad cases of chicken pox.

Mrs Day said: “She has pretty much amazed everyone with what she has done.

“To a lot of people she’s just had surgery but when you know the extent of it all it’s different.

“She’s a miracle – how she has done, she’s living up to her name; we are really proud of her.”

Since leaving hospital for the first time Evanee had weekly visits to check her weight and progress.

But doctors were still unsure what to do and how to fix her heart fully. In May the family went back to London where it was decided she would undergo her second heart operation.

She was home six days later and has since had further check-ups at home and at hospital.

The family have been told Evanee should be able to lead a normal life with no restrictions to the things she can do. Surgeons have said though she may need further surgery over the next five years.

“We can do all the normal things families do now, before our life was on hold since September when we found out there was a problem,” Mrs Day said.

Have you got a story to tell about your child’s health? Email us at newsroom@archant.co.uk or call 01473 324802.

shares

0 comments

Welcome , please leave your message below.

Optional - JPG files only
Optional - MP3 files only
Optional - 3GP, AVI, MOV, MPG or WMV files
Comments

Please log in to leave a comment and share your views with other East Anglian Daily Times visitors.

We enable people to post comments with the aim of encouraging open debate.

Only people who register and sign up to our terms and conditions can post comments. These terms and conditions explain our house rules and legal guidelines.

Comments are not edited by East Anglian Daily Times staff prior to publication but may be automatically filtered.

If you have a complaint about a comment please contact us by clicking on the Report This Comment button next to the comment.

Not a member yet?

Register to create your own unique East Anglian Daily Times account for free.

Signing up is free, quick and easy and offers you the chance to add comments, personalise the site with local information picked just for you, and more.

Sign up now

Crowds enjoyed the scorching sunshine on the first day of the Suffolk Show 2015.

The 184th Suffolk Show has been declared a “feast of excitement” by director Bill Baker.

UKIP MP Douglas Carswell is driven away in a police van for his own safety as he gets caught up in the anti-austerity protest in Westminster, central London, as protesters mark their opposition to measures set out in the Queen's Speech, following the State Opening of Parliament. Photo: Yui Mok/PA Wire

Clacton’s UKIP MP had to be protected by police in London after being confronted by protestors.

Police have closed the road

A motorcyclist has died after a crash on the A120 at Wix.

The Suffolk Young Farmers Tug of War at the Suffolk Show.

Having lived in the county for nearly 19 years, when telling people I had never been to the Suffolk Show, I was always given a surprised response.

Beautiful day for the first day of the Suffolk show

Town meets country with style and substance as Trinity Park basks in glorious spring sunshine. Lynne Mortimer reports on day one at the Suffolk Show.

Crowds enjoyed the scorching sunshine on the first day of the Suffolk Show 2015.
Hayden and Sienna Cawston in the beach area.

See your photos from day one of the Suffolk Show at Trinity Park today.

The mascots race at the Suffolk Show in the Presidents Ring.

Tractor Boy has spoken of his “regret” after finishing third in the Mascot Derby.

Glenn Williamson, from Williamson Partnership, will be featured on Homes Under the Hammer with a flat he has renovated in Ipswich.

An Ipswich businessman is to appear on the BBC show Homes under the Hammer after he increased the value of a property by £100,000.

Queen Elizabeth II and The Duke of Edinburgh leave Buckingham Palace, London, as the royal procession makes its way along The Mall ahead of the State Opening of Parliament. PRESS ASSOCIATION Photo. Picture date: Wednesday May 27, 2015. See PA story POLITICS Speech. Photo credit should read: Yui Mok/PA Wire

David Cameron said he aims to ensure the recovery reaches every part of the country – including the East of England – as the Queen delivered his One Nation agenda for the coming parliament.

John Dugmore of The Suffolk Chamber of Commerce

Prime Minister David Cameron has repeated his government’s pledges to invest in East Anglia’s infrastructure as the debate on the Queen’s Speech gets under way.

Most read

Most commented

Topic pages