Overcast

Overcast

max temp: 19°C

min temp: 15°C

ESTD 1874 Search

Stowmarket: Family’s harrowing journey after the loss of one of their twin daughters spurs them into action in aid of The Sick Children’s Trust

16:59 19 February 2014

Pippa and Ruby together in hospital

Pippa and Ruby together in hospital

Archant

Watching a newborn baby fight for life would be devastating for any parent.

shares

But Suffolk couple Kelly and Geoff Anthony, faced not only keeping a hospital vigil for seriously ill newborn Ruby - they were also looking after her twin sister Pippa at the same time.

While Pippa was born healthy at West Suffolk Hospital last June, her twin Ruby had struggled to breathe.

She suffered a number of health problems and needed specialist care and surgery at different hospitals in Suffolk, Cambridge and London.

Ruby lost her fight for life at London’s Great Ormond Street Hospital in October.

Mother Kelly, from Cedars Park, Stowmarket, recalled: “During this long week we spent all our time with Ruby; we talked to her, brushed her hair, lubricated her eyes, said our prayers, lit a candle in the hospital’s chapel and had her baptised. We even took her footprints and handprints as we prepared ourselves for the worst.

“There was nothing more the doctors could do to help our little girl and after 10 stressful weeks at the hospital, on the October 25, it was time to withdraw Ruby’s medication and she passed away peacefully in our arms.”

It was a deeply traumatic time for the family, but throughout it they say the support of one charity – The Sick Children’s Trust – was a shining light.

It provided accommodation for them close to the hospitals where Ruby was being cared for, preventing long daily trips.

And now the family are raising money for the charity as a way of thanking it.

Kelly, 35, said: “The first few days of looking after my two new-born babies was so demanding and tiring that both of us were left with very little energy for travelling, so having somewhere to stay that was within the hospital was just perfect.

“We could take Pippa back to our room for feeding and changing and could even cook our own meals in the communal kitchen, which was a god-send.”

The family had been moved at an early stage to The Rosie Hospital, in Cambridge, where after a few days Kelly and Pippa were discharged from their ward.

But instead of then having to make the hour’s drive to be by the side of Ruby, who remained in hospital, the family were given a room as part of a facility managed by The Sick Children’s Trust by the hospital.

Over the next week Ruby came off the ventilator, opened her eyes and appeared to be making improvement. The family were able to sleep just two floors below her and could visit her in the intensive care unit at any time of the day or night.

Kelly said: “When Ruby was 10 days old we were told she would need heart surgery to close some small holes in her heart in six months’ time and so arrangements were made to transfer her back to West Suffolk Hospital.”

While there the family made the daily trip to the hospital – now only a 20-minute drive. Despite Ruby being on a high-calorie formula she struggled to gain weight and it became clear to the doctors her problems were more serious than first thought.

She was taken to Great Ormond Street Hospital, London, as her lung pressure was dangerously high.

“We were devastated but knew she would get the best care possible,” Kelly said. “Again the thought of us all being separated was unimaginable especially as this time we would be over 100 miles away from home.

“But again this worry was only shortlived as on arrival at the hospital we were told that there would be a room available for all three of us at Rainbow House, another ‘Home from Home’ run by The Sick Children’s Trust.”

To add to her heart defects, a Down’s Syndrome diagnosis and lung problems, doctors discovered Ruby had liver malformations. She subsequently had two ground-breaking surgeries, the first of which was eight hours long.

Hopes brightened slightly for Ruby when she was moved from intensive care to a dependency ward where she came off her oxygen for a few days.

She was then moved again this time to King’s College Hospital to be seen by liver specialists.

A couple of days later Ruby took a turn for the worse and was transferred back to Great Ormond Street.

With her lung pressure as high as ever she was placed into an induced coma to try and keep her condition stable, but she died on October 25.

Geoff, 33, who works as a sales executive, has already raised £6,000 for the charity by growing a beard.

Now the family are hosting a chocolate-themed tea party to further support the cause.

It will be a private event, but the family is urging other people to get involved in the Sick Children’s Trust’s Big Chocolate Tea Party.

It runs throughout April and the
charity wants people to host their own party. Go to www.sickchildrenstrust.org for more details.

shares

0 comments

Suffolk County Council's headquarters at Endeavour House in Ipswich.

The number of high earners at Suffolk County Council has risen for the first time in four years, according to new figures.

The scene of the accident on the A133 at Weeley between a push bike and a van.

A woman cyclist is in a life-threatening condition in hospital following a collision with a van on the A133 at Weeley.

Knives handed in during an amnesty at Clacton Police Station

A survey by a weapons awareness charity has found one-quarter of youngsters in Clacton have been threatened with a knife.

The Energy from Waste Site in Great Blakenham.

Nearly a year after it first started to turn Suffolk’s waste into something useful – electricity – the Great Blakenham incinerator is helping to keep rubbish out of the county’s holes in the ground.

Police are investigating after rope was tied across a road

‘Lives are being put at risk’ – that’s the warning from Essex Police after motorists had to manoeuvre around a rope which was tied across a road.

Writer and historian Dr Mark Felton

A historian and author from Colchester whose book has been picked up by Hollywood has released a new thriller based on another daring Second World War mission.

Toby Freeman from Robin Cancer Trust, Ben Payne from Reflective Ice Limited and Angie Diggens from St Helena Hospice are teaming up to have a charity night at the Winter Wonderland and Ice Rink in Colchester Castle Park.

An ice rink planned for central Colchester this winter will be taken over by local charities for a night.

Ladbrokes

Two men stole hundreds of pounds during an armed robbery at a bookmakers in Felixstowe last night.

Maggie Scorer and Oscar in front of Brighton Pier

It has taken close to six months, covering a distance of almost 5,000 miles, but the home stretch is in sight for round-Britain cyclist Maggie Scorer and her travelling companion, Oscar.

Robert Morton

The new chief executive of the East of England Ambulance Service, Robert Morton, has big plans for the future of the trust.

Most read

Most commented

Topic pages