Partly Cloudy

Partly Cloudy

max temp: 22°C

min temp: 14°C

ESTD 1874 Search

Stowmarket: Lily Webster’s family calls for screening for heart conditions

06:01 31 March 2014

Melanie Webster is pictured holding a photo of her daughter Lily Webster who died during a trampolining lesson. Melanie is trying to raise awareness of the rare heart condition Lily had.

Melanie Webster is pictured holding a photo of her daughter Lily Webster who died during a trampolining lesson. Melanie is trying to raise awareness of the rare heart condition Lily had.

A mother whose 15-year-old daughter died from a rare heart condition has called for urgent action to boost the numbers of young people screened.

shares

Melanie Webster, from Stowmarket, is campaigning to raise the profile of Sudden Adult Death Syndrome (SADS) – a condition which if not treated can result in a dramatic and often spontaneous death.

She said that more funding is needed to boost research into SADS to prevent further tragedies after her daughter, Lily, collapsed during a trampolining class in 2012.

Her comments come after leading cardiologist Sanjay Sharma said the number of young people – between 14-35 – who are dying each week from SADS is significantly higher than current estimates.

Mrs Webster and her family have organised two screening days at Lily’s school, Stowmarket High on July 1-2.

“I’m not surprised by the news because of the involvement I have had with the charity CRY (Cardiac Risk in the Young),” she said.

“Doctors are often not looking specifically for these conditions because they are seeing it as being rare in young people and they want to rule out the most common things first.”

She said awareness was being raised by the number of deaths being recorded as a result of conditions like SADS. Dr Steve Cox, is director of screening at CRY.

He said: “Every week in the UK, around 12 young people die suddenly from a previously undiagnosed heart condition. Four out of five of these deaths will occur with no prior symptoms – which is why CRY believes that screening is so vitally important.

“However, many experts believe that the actual number of deaths recorded could just be ‘the tip of the iceberg’ with many causes being wrongly recorded as asthma, epilepsy or even drowning.”

He said that in Italy, where screening is mandatory for young people engaged in sport, they have reduced the numbers dying by 90%.

The John Peel Centre for Creative Arts, in Stowmarket, is to hold a fashion show on June 1 which will raise money for CRY.

shares

0 comments

A visualisation of the new high school at Moreton Hall.

Educationalists have welcomed the announcement that a west Suffolk-based trust has been put forward to sponsor a new high school in Bury St Edmunds.

Brown bins are used for garden waste, but there could soon be a charge

Hundreds of thousands of Suffolk households could have to pay £50 a year if they want to continue to recycle their garden waste through the brown bin scheme.

Dancers Crystal Main and Bruce Lait

Professional dancer Crystal Main said her passion for her art has helped her to overcome the psychological trauma of 7/7.

Amber Rudd is pictured with L-R: Dee Gathorne-Hardy (senior ranger), Patrick Begg (programme director - Ickworth), Jonathan Rhodes (programme manager - Ickworth), Gill Dickinson (Good Energy), Stephanie Hall (project manager - National Trust) and Miranda Campbell (East of England environmental practices adviser - National Trust).

A new biomass boiler at Ickworth has been officially switched on by a Government minister as the National Trust announces a £30million investment in renewable energy to heat and power more of its estates.

Sudbury Cricket Club

A top satirist and fundraiser extraordinaire are among the latest names added to the squad of a charity cricket team visiting Suffolk at the end of July.

Front – Cllr Geoff Holdcroft (left) with NRG Theatres’ chief executive, Ray Anderson, watched by (back – left to right) with NRG Theatres’ artist director, Vince Rayner, Cllr Andy Smith and Suffolk Coastal’s Leader, Cllr Ray Herring.

Photo: Paul Nixon

Owners of a seaside theatre have extended the deadline for a consultation exercise to gain people’s views on how they would like to see the theatre develop.

The bomb damaged Circle Line train stopped between Liverpool Street and Aldgate staions in London - AP Photo/Takayuki Kawashima

British Transport Police Inspector Bob Munn led the rescue effort after being the first uniformed officer to enter the tunnel at Aldgate on 7/7.

Ipswich Crown Court

An Ipswich care assistant who stole £2,900 from a disabled man’s savings account has walked free from court after a judge decided not to send her straight to prison.

South East Suffolk Magistrates Court

Joe Drew, 29, of Cardiff Avenue, Ipswich, has been charged with two counts of assaulting a court security officer at South East Suffolk Magistrates Court on May 28.

The 2014 Party in the Park event in Belle Vue Park in Sudbury.

A marching band, jive dancers and a procession of samba drummers are among the attractions expected to pull in thousands of visitors to a ‘party in the park’ event in west Suffolk next weekend.

Most read

Most commented

Topic pages