Overcast

Overcast

max temp: 22°C

min temp: 15°C

ESTD 1874 Search

The pigs have arrived. See the latest

Pigs Gone Wild

news here.

Stowmarket: Lily Webster’s family calls for screening for heart conditions

06:01 31 March 2014

Melanie Webster is pictured holding a photo of her daughter Lily Webster who died during a trampolining lesson. Melanie is trying to raise awareness of the rare heart condition Lily had.

Melanie Webster is pictured holding a photo of her daughter Lily Webster who died during a trampolining lesson. Melanie is trying to raise awareness of the rare heart condition Lily had.

A mother whose 15-year-old daughter died from a rare heart condition has called for urgent action to boost the numbers of young people screened.

Melanie Webster, from Stowmarket, is campaigning to raise the profile of Sudden Adult Death Syndrome (SADS) – a condition which if not treated can result in a dramatic and often spontaneous death.

She said that more funding is needed to boost research into SADS to prevent further tragedies after her daughter, Lily, collapsed during a trampolining class in 2012.

Her comments come after leading cardiologist Sanjay Sharma said the number of young people – between 14-35 – who are dying each week from SADS is significantly higher than current estimates.

Mrs Webster and her family have organised two screening days at Lily’s school, Stowmarket High on July 1-2.

“I’m not surprised by the news because of the involvement I have had with the charity CRY (Cardiac Risk in the Young),” she said.

“Doctors are often not looking specifically for these conditions because they are seeing it as being rare in young people and they want to rule out the most common things first.”

She said awareness was being raised by the number of deaths being recorded as a result of conditions like SADS. Dr Steve Cox, is director of screening at CRY.

He said: “Every week in the UK, around 12 young people die suddenly from a previously undiagnosed heart condition. Four out of five of these deaths will occur with no prior symptoms – which is why CRY believes that screening is so vitally important.

“However, many experts believe that the actual number of deaths recorded could just be ‘the tip of the iceberg’ with many causes being wrongly recorded as asthma, epilepsy or even drowning.”

He said that in Italy, where screening is mandatory for young people engaged in sport, they have reduced the numbers dying by 90%.

The John Peel Centre for Creative Arts, in Stowmarket, is to hold a fashion show on June 1 which will raise money for CRY.

0 comments

England's Harry Martin in 2014.

The greatest sporting spectacle on the planet is almost upon us once again.

An East of England Ambulance Service Trust vehicle. Photograph Simon Parker

An elderly woman was taken to hospital on Sunday after she collided with a car in Beccles which then did not stop.

Abellio Greater Anglia

A person has been pronounced dead after being struck by a train near Needham Market station.

Cupola House, in Bury St Edmunds

A steak and lobster restaurant from Southend is understood to be moving into the newly-renovated Cupola House in Bury St Edmunds.

It's hot up there!

You know it’s hot when your thighs stick together. For men out there, it’s more of a woman thing, writes Lynne Mortimer.

Voters at Whiting Street EU polling station, Bury St Edmunds.

Around 7% of people who voted for Brexit in Suffolk and north-east Essex now regret their decision, a poll by this newspaper has found.

Emma Young, assistant nurse at St Helena Hospice in Colchester.

The hospice star who moved staff and patients to tears with a beautiful Adele rendition which has gone viral has said she would relish the chance to release a Christmas song for the charity.

Most read

Great Days Out

cover

Click here to view
the Great Days Out
supplement

View

Most commented

HOT JOBS

Show Job Lists

Streetlife

Newsletter Sign Up

Sign up to the following newsletters:

Great British Life

Great British Life
MyDate24 MyPhotos24