Partly Cloudy

Partly Cloudy

max temp: 18°C

min temp: 11°C

ESTD 1874 Search

Stowmarket mum to help heart screen 600 people by summer after daughter Lily Webster died from rare condition in 2012

12:02 08 January 2016

Melanie Webster at the first-ever heart screening days at Stowmarket High School in 2014

Melanie Webster at the first-ever heart screening days at Stowmarket High School in 2014

Almost four years after she lost her 15-year-old daughter to an undiagnosed heart condition, Melanie Webster is fighting so families do not suffer the same tragedy.

Lily Webster who died suddenly in January 2012 at Mid Suffolk Leisure CentreLily Webster who died suddenly in January 2012 at Mid Suffolk Leisure Centre

It was just another cold January afternoon when Lily Webster collapsed during a school trampolining class. An inquest found she died from the rare heart condition called sudden adult death syndrome.

The popular Stowmarket High School pupil’s friends and family rallied and organised a series of fundraisers to support the charity CRY (Cardiac Risk in the Young).

In 2014, Mrs Webster and her family held the first two of their heart-screening days at the school, using CRY’s medics, for children and adults between 14 and 35. About 200 people attended – with some sent for further tests as heart anomalies were detected.

Now the family is raising money, on top of the £35,000 already collected, to support the third year of free heart tests – which will bring the total screened to about 600.

The memorial football match at Stowmarket Town Football Club in memory of Lily Webster. Stowmarket High School (blue and white) v Stowupland High School.The memorial football match at Stowmarket Town Football Club in memory of Lily Webster. Stowmarket High School (blue and white) v Stowupland High School.

“We have done a lot over the year – we screened about 200 people again and this year are looking to hold it over a weekend so some older people in work can attend,” Mrs Webster said.

“I have a really lovely group of friends who I could not do without. It’s quite nice as we enjoy the fundraising things that we choose to do which is really good. We want the screening to carry on and to make sure that it is available to young people. We want screening to not have to be funded by charity, but the government.”

It will be the fourth anniversary of Lily’s death on January 16 – and Mrs Webster said the day would be difficult to get through.

“We try and do something to celebrate her birthday in June, but January we are together as a family,” she added. “I think it’s very difficult to comprehend that time can pass; and I will never understand why [Lily passed away].”

Heart screening at Stowmarket High School. Doctor Aneil Machotra with student Lewis Double.Heart screening at Stowmarket High School. Doctor Aneil Machotra with student Lewis Double.

In the UK, children do not undergo mandatory electro-cardiogram tests which can diagnose cardiac defects. CRY says at least 12 young people die of undiagnosed heart conditions every week.

And countries such as Italy compulsorily test all children who participate in sport.

It costs £3,500 for a day of screening carried out by CRY doctors – with a limited team available to cover the whole country.

Events held so far by the Webster family include a London to Brighton walk which raised £4,000, film evenings at the Regal Theatre, a fashion show organised with Stowmarket boutique Molls and Dolls and a memorial football match involving school teachers.

The third lot of screening days is to be held in July. To donate to the Lily Webster Memorial Fund go to: www.c-r-y.org.uk or call 01737 363222.

0 comments

Welcome , please leave your message below.

Optional - JPG files only
Optional - MP3 files only
Optional - 3GP, AVI, MOV, MPG or WMV files
Comments

Please log in to leave a comment and share your views with other East Anglian Daily Times visitors.

We enable people to post comments with the aim of encouraging open debate.

Only people who register and sign up to our terms and conditions can post comments. These terms and conditions explain our house rules and legal guidelines.

Comments are not edited by East Anglian Daily Times staff prior to publication but may be automatically filtered.

If you have a complaint about a comment please contact us by clicking on the Report This Comment button next to the comment.

Not a member yet?

Register to create your own unique East Anglian Daily Times account for free.

Signing up is free, quick and easy and offers you the chance to add comments, personalise the site with local information picked just for you, and more.

Sign up now

RAF Honington - Barnham Camp.

A 62-year-old motorcyclist who died at the scene of a two vehicle collision near RAF Barnham on Thursday has been named as Peter Hancock from Sudbury.

Made in Dagenham's Daniella Bowen and cast. Photo: Mark Sepple

It’s been nearly 50 years since women workers at Ford’s Dagenham plant went on strike for equal rights, writes Wayne Savage.

Do you know this man? Police have released an e-fit image following a burglary in Braintree

Police have released an e-fit image of a man they want to speak to in connection to a burglary in Braintree.

Ipswich Crown Court

A father stabbed by his son more than 30 times during a row about a printer has asked a court for a restraining order banning all contact between them to be reinstated.

Fire Service Stock Pictures

A fire engine from Ipswich’s Princes Street station was called to extinguish a fire in a pile of rubbish this morning.

People in Earl Soham are concerned about the erosion of their village green.

It is the proud centrepiece of many an English village - but in one Suffolk community it is disappearing by the day.

Suffolk Fire and Rescue Service image.

Firefighters were called earlier this morning to a gas cooker fire at The Anchor pub, Walberswick.

Most read

Great Days Out

cover

Click here to view
the Great Days Out
supplement

View

Most commented

HOT JOBS

Show Job Lists

Streetlife

Newsletter Sign Up

Sign up to the following newsletters:

MyDate24 MyPhotos24