Felixstowe: Family turning baby’s cystic fibrosis diagnosis into a force for good

Paul and Amber O'Connor have discovered that their four-week-old baby girl, Sienna-Mai, has cystic f

Paul and Amber O'Connor have discovered that their four-week-old baby girl, Sienna-Mai, has cystic fibrosis. Paul has jumped into action and will run the Great Manchester Run in aid of the Cystic Fibrosis Trust. - Credit: Archant

Parents who were devastated after their four-week-old baby girl was diagnosed with cystic fibrosis have launched a fundraising mission to boost a charity which carries out research into the condition.

Paul and Amber O’Connor, of Melford Way, Felixstowe, said they were shocked when they were told little Sienna-Mai had the disease.

But the family have decided to turn their situation into a force for good and Mr O’Connor, along with step daughter Chanelle, 16, are now setting out on a fundraising drive for the Cystic Fibrosis Trust.

Mr O’Connor, 42, said: “We were devastated when we found out.

“She is such a good child. She doesn’t moan with all her medicine – she is on antibiotics twice a day for life, she has got to take enzymes every time she feeds, she has multi vitamins everyday and yet she is the happiest little baby.”

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Mr O’Connor, an online retailer, and Chanelle are now in training for the Great Manchester Run as they aim to help the Cystic Fibrosis Trust’s aim of finding a cure for the disease, which makes it difficult for sufferers to breathe and digest food.

Although they have not set a fundraising target for the 10k event, they are hoping to make a sizeable contribution to the trust.

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Mr O’Connor, who attends Elim Church in Ipswich, said: “I am going to go on and on finding different ways to raise money.”

Despite the diagnosis, the family say that Sienna-Mai is exceeding all expectations – and they have been overwhelmed by the support of their friends and family.

Mr O’Connor added: “We have had amazing support from the church and the hospital and all our friends. The support has been fantastic.”

If you would like to donate, visit virginmoneygiving.com/pauloconnor or there is also a sponsorship form at The Star and EADT offices in Hamilton Road, Felixstowe.

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