Loving tribute to baby Regan

LOVING parents have today spoken of their pride for their “happy and smiley” baby boy who tragically died aged just 27 weeks.

Gareth and Shareen Moir said little Regan was an adored son and dearly-wanted brother who would never be forgotten.

The tiny tot passed away last month after being diagnosed with spinal muscular atrophy (SMA) – a genetic disease that affects muscle movement.

His parents, both 29, of Churchill Close, Woodbridge, are now hoping to raise awareness of the condition and the work of the local Children’s Community Care Team.

Little Regan, whose funeral was held last week, was born on January 5 at Ipswich Hospital and there were no immediate signs that he was unwell.

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However, after about five weeks his parents, who have another son, Cameron, aged six, noticed something was wrong.

“He didn’t seem to move his arms and legs as well as others his age,” his mum said. “I mentioned it to the health visitor and I was told to go to the doctor. That was when the ball started rolling.

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“The condition meant he was weaker than most babies and had limited movement, although you wouldn’t believe it.

“He always smiled. In all the messages and flowers we have received people said he was a happy, smiley, giggly baby.

“Even up until the last minute. We held a six-month celebration barbecue because we knew he was unlikely to see his first birthday and he was laughing and smiling on demand.” A few days later, on Tuesday, July 13, Regan passed away peacefully at home.

Throughout it all his parents were grateful for the support they received from the Children’s Community Care Team.

“They were fantastic,” Mr Moir said. “Without their help we wouldn’t have been able to enjoy our time with Regan as much as we did. The support was there 24/7 and they were just a phone call away. It was a great comfort. When we did need to contact them they were here in 10 minutes.”

Anyone who would like to make a donation to the Children’s Community Care Team can make cheques payable to Michael Smy Funeral Directors, 145 Felixstowe Road, Ipswich, IP3 8EB.

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