Family's thanks to hospital 'for giving our baby a chance to walk'
- Credit: Sonya Duncan
The parents of a one-year-old girl who had a leg amputation due to a rare condition have thanked a hospital "for giving our baby a chance to be able to walk".
Fibular hemimelia only usually only affects one side, but in Posie's case it was both her lower limbs.
Just after her first birthday, she had surgery on her left leg in July this year, an amputation from her ankle that has left her with a stump.
Her parents Jodie Weeder, 26, and Dominic Sadler-Smith, 29, from Great Cornard, will give back to the Royal National Orthopaedic Hospital by walking 100 miles over two months in aid of the hospital charity.
Jodie said they have had the "best care" and they cannot thank Posie's surgeon enough for giving their daughter the chance to walk with prosthetics.
You may also want to watch:
The couple are also passionate about raising awareness of fibular hemimelia - which they say some medics haven't really come across.
Jodie, who has a cleaning business, said children like her Posie "wouldn’t have the chance to walk" without the hospital, adding "they give us hope".
She said on the recently-launched JustGiving page: "Every six months Posie will need new prosthetics until she is older.
- 1 Affordable homes project proposed for east Suffolk village
- 2 £1million beach village set for approval as part of resort regeneration
- 3 Hospital visits to be suspended due to Covid infection rise
- 4 Controversial north Essex village homes plan set for go-ahead
- 5 Woman has heart attack and dies in ambulance waiting for a hospital bed
- 6 'The culture is right' - Johnson leaves Town in good hands after whirlwind trip
- 7 Map reveals raw sewage overflow into Suffolk rivers
- 8 Emergency services conduct search and rescue mission off Harwich coast
- 9 Why is this Suffolk address on Covid lateral flow test boxes?
- 10 Town keeper Holy set for emergency loan move
"We understand they are not cheap to make and it takes time to design the perfect legs for our little ones. So this is why we are doing this. We are so so grateful for the NHS and for Stanmore Royal National Orthopaedic Hospital."
She added "for giving our baby a chance to be able to walk, run and dance" staff there "all hold a piece of our hearts".
Posie's family are waiting to find out whether she will also need surgery on her right leg, as there are concerns about whether it can support her weight.
She already has prosthetics for both of her legs, and Jodie said she had taken to the left one better than the right.
She describes her daughter as an "incredible" and "inspiring" little girl who doesn't let anything stop her.
Jodie and Dominic will be joined by friends and family on the fundraising challenge, which is due to finish on December 1, hopefully at the Stanmore hospital site.
Dominic said they are keen to hear suggestions for walks to make up their 100-mile target.
To get in contact or donate visit the JustGiving link.